SAPHO syndrome includes a variety of inflammatory bone disorders that may be associated with skin changes. SAPHO stands for Synovitis-Acne-Pustulosis-Hyperostosis Osteomyelitis.
An entity initially known as Chronic Recurrent Multifocal Osteomyelitis (CRMO) was first described in 1972. The term SAPHO was coined in 1987.
Treatment is with NSAIDs, steroids, methotrexate or Enbrel.
References:
Round 7: Synovitis-Acne-Pustulosis-Hyperostosis osteomyelitis syndrome (SAPHO). Johns Hopkins University School of Medicine.
SAPHO syndrome, from Wikipedia, the free encyclopedia.
Thursday, March 6, 2008
Wednesday, March 5, 2008
Yeah, but my [body part] is so [adj]
The hardest part about raising a daughter has been watching my mouth. I swear a lot. I use the F-word A LOT. I also take almost any opening I get to say something negative about my body.
"Oh these chicken breasts are huge!" I bet they could at least button their shirt.
As women, I think we all do this. As a woman who isn't a size 8 much less a size 2, I do this constantly. I work in an all-woman environment and at least once a week we find ourselves in some sort of "My body is worse" pissing match. So when I read Rosie's post my heart broke and I teared up at its brutal honesty:
And so did I. Go ahead, click on the link to read the entire post, it's totally worth it.
I've assumed that we'd end up with a swear jar at some point at home, but a self deprecation jar? I never would have thought that up. But now it's out there. About six months ago my daughter asked her daddy if her legs were fat. She was just past her 4th birthday. Fat? *sigh* Thankfully it was a one-time occurrence, but it still lingers in the air.
The Gods created my daughter in my image and this is a blessing and a curse.
It is a curse because I really don't like my body. I treat it poorly. I don't take care of it the way I know I should. I scold it, poke it, and jiggle the flab. Yet I have read memoir after memoir essay about women growing up with mom's who diet and hated their bodies. Some of the women wrote about how others who comment that they were a "little Susan" at the same time they saw their mother's weighing chicken breasts to ensure a "correct dinner." I don't want that to be what my daughter remembers of me when she's grown and I'm dead.
It is a blessing because each morning I wake her up and see how freaking beautiful she is. I see how much she looks just like me when I was her age and it scares me. Some days I think something triggered the ugly gene...maybe around the same time I got curly hair aka puberty. But most of the time, I have to swallow my self-hate and realize that if she is this gosh darn beautiful (and it's been verified by many an outsider) then there must be some of that in me too.
And here I thought I needed a therapist, when all I needed was my daughter.
cross-posted at Chicago Parent
Technorati tags: body image, feminism, latina, Hijas Americanas
"Oh these chicken breasts are huge!" I bet they could at least button their shirt.
As women, I think we all do this. As a woman who isn't a size 8 much less a size 2, I do this constantly. I work in an all-woman environment and at least once a week we find ourselves in some sort of "My body is worse" pissing match. So when I read Rosie's post my heart broke and I teared up at its brutal honesty:
One of the things that I often talk about is the need for us to modify our own language– what we project about ourselves– and the language of others. That instead of saying “I hate my cellulite” when someone else says she hates her nose in order to be in companionship with that person, we should say, “I can’t imagine why you would hate your nose, and you have a smile that lights up the world” (or whatever else might be the case)...After my talk at Amherst College, I met some roommates who told me about the Self Deprecation Jar they had in their suite. Anyone who says anything bad about him or herself has to deposit some cash in the jar. When it all adds up to a quality loaf of bread, they hit the bakery. I just loved it.
And so did I. Go ahead, click on the link to read the entire post, it's totally worth it.
I've assumed that we'd end up with a swear jar at some point at home, but a self deprecation jar? I never would have thought that up. But now it's out there. About six months ago my daughter asked her daddy if her legs were fat. She was just past her 4th birthday. Fat? *sigh* Thankfully it was a one-time occurrence, but it still lingers in the air.
The Gods created my daughter in my image and this is a blessing and a curse.
It is a curse because I really don't like my body. I treat it poorly. I don't take care of it the way I know I should. I scold it, poke it, and jiggle the flab. Yet I have read memoir after memoir essay about women growing up with mom's who diet and hated their bodies. Some of the women wrote about how others who comment that they were a "little Susan" at the same time they saw their mother's weighing chicken breasts to ensure a "correct dinner." I don't want that to be what my daughter remembers of me when she's grown and I'm dead.
It is a blessing because each morning I wake her up and see how freaking beautiful she is. I see how much she looks just like me when I was her age and it scares me. Some days I think something triggered the ugly gene...maybe around the same time I got curly hair aka puberty. But most of the time, I have to swallow my self-hate and realize that if she is this gosh darn beautiful (and it's been verified by many an outsider) then there must be some of that in me too.
And here I thought I needed a therapist, when all I needed was my daughter.
cross-posted at Chicago Parent
Technorati tags: body image, feminism, latina, Hijas Americanas
The Secretary is in Charge
I really wish I had saved it. Someone somewhere (email? blog?) made a remark about Hillary basing her experience as First Lady as real experience was proof that yes indeed, the secretary can take over her bosses job.
While I know that Hillary was far more than Bill's secretary, I think we can all be in agreement that during their 8 years in the White House, he turned to her for advise or she offered it freely. Each day my husband & I give each other a run down of our day as well as offer advise on how to handle situations. In our world that means discussing how best to write a grant proposal. In Hillary's world it means whether to use gender or sex in a bill.
The dismissal of her years in the White House rings with the same sexist crap that comes out when a Fortune 100 executive gets a divorce and the wife gets a huge settlement. "He earned it!" people cry. Um, no...they earned it. Very often you will find that the stay at home wife worked full-time while the husband labored away at business or medical school. She was the one called when a last minute dinner broke out with clients. And of course all the social events she needed to attend so she could be her husband's arm jewelry. Not rocket science, but must-haves in corporate America for the man to be successful.
In Hillary's case, she was a trusted confidant and I'm sure an advisor. She had a legacy to uphold from Abigail Adams to Eleanor Roosevelt, First Ladies did much more than just pick out china patterns. And anyone who thinks that Michelle Obama won't pipe in when certain topics arise are woefully mistaken. Heck there was talk for a bit that Laura Bush should run for office! Her resume does include talking American women into supporting the invasion of Afghanistan for "the sake of the women under Taliban rule!"
Yes, in some ways I wish we Hillary had a Madeline Albright background, without the being born a non-citizen part, but we don't. Instead we have to choose from a man who does epitomize "global citizen" and a woman who was the best understudy in the world.
Technorati tags: Hillary Clinton, feminism, politics
While I know that Hillary was far more than Bill's secretary, I think we can all be in agreement that during their 8 years in the White House, he turned to her for advise or she offered it freely. Each day my husband & I give each other a run down of our day as well as offer advise on how to handle situations. In our world that means discussing how best to write a grant proposal. In Hillary's world it means whether to use gender or sex in a bill.
The dismissal of her years in the White House rings with the same sexist crap that comes out when a Fortune 100 executive gets a divorce and the wife gets a huge settlement. "He earned it!" people cry. Um, no...they earned it. Very often you will find that the stay at home wife worked full-time while the husband labored away at business or medical school. She was the one called when a last minute dinner broke out with clients. And of course all the social events she needed to attend so she could be her husband's arm jewelry. Not rocket science, but must-haves in corporate America for the man to be successful.
In Hillary's case, she was a trusted confidant and I'm sure an advisor. She had a legacy to uphold from Abigail Adams to Eleanor Roosevelt, First Ladies did much more than just pick out china patterns. And anyone who thinks that Michelle Obama won't pipe in when certain topics arise are woefully mistaken. Heck there was talk for a bit that Laura Bush should run for office! Her resume does include talking American women into supporting the invasion of Afghanistan for "the sake of the women under Taliban rule!"
Yes, in some ways I wish we Hillary had a Madeline Albright background, without the being born a non-citizen part, but we don't. Instead we have to choose from a man who does epitomize "global citizen" and a woman who was the best understudy in the world.
Technorati tags: Hillary Clinton, feminism, politics
Don't call it a come back!
What a way to usher in Women's History Month, but by Hillary making history.
The funny thing is that last night my daughter noted that while she likes them both, she wanted Obama to win. Ah, 4-year-old flights of fancy. Maybe if Hillary wore some sparkly shoes, she'll want to come back to Camp Clinton. I jest!!
The best part of last night wasn't the wins, but when I was again trying to explain the election to my daughter, who John McCain was, and who wants to be President. She asked who was President and I said, "George W. Bush." She said, "I don't like him." I smiled and said, "Neither do I,sweetie." Hey, I knew I didn't like Reagan very early on.
How to Use Web 2.0 Services for Research
According to Wikipedia, "Web 2.0 is a trend in World Wide Web technology, and web design, a second generation of web-based communities and hosted services such as social-networking sites, wikis, blogs, and folksonomies, which aim to facilitate creativity, collaboration, and sharing among users. "GooMedic.com has a summary on using Web 2.0 services for research which includes:
Social Writing (Documents) and Research Papers
Social Bookmarking
Sharing Resources
Social Networking
Groupware
Social Online File Storage
Social Calendars
Social ToDo Lists
Social Statistics
References:
Web 2.0 as Research Tools 02-1- : Collaborative software. GooMedic.com, 02/2008.
Image source: ScienceRoll, a Creative Commons License.
Related:
Research Tip: Create Surveys and Databases with Online Forms via Google Spreadsheets
Google Docs & Spreadsheets Could Replace Word & Excel for the Average User. Clinical Cases and Images - Blog, 10/2006.
Video presentations: Novel concepts and easy-to-use web tools for researchers. European Molecular Biology Laboratory, 2006.
Tuesday, March 4, 2008
Reproductive Justice & Illinois
Here are some quick updates on reproductive justice in Illinois as I watch Hillary thank her supporters for tonight's wins:
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Don't forget about my Boca Burger Give-a-way!
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Technorati tags: reproductive justice, Illinois, feminism, pro-choice, NARAL, ACLU, Planned Parenthood
- NARAL gives Illinois a B- for protecting women's reproductive rights. Yup, it's time for their annual "Who Decides" report card. Sadly 92% of Illinois counties have no abortion provider. Who has the top grade? Which state got the lowest grade? Jump on over to the report card and find out and why they got the grades they did. One tick mark against Illinois is a parental notification law for teens that has been under an injunction. Which brings me to...
- The parental notification is STILL not enforceable! Victory!! Unfortunately our very pro-choice Attorney General has been painted into a political corner and most likely will appeal this and maybe all the way to the Supreme Court. Let's hope that before that happens we get a pro-choice President who can appoint some pro-choice justices.
The Parental Notice of Abortion Act was passed in 1984 and updated in 1995 but never enforced because the Illinois Supreme Court refused to issue rules spelling out how judges should handle appeals of the notification requirement. A federal court held that the law could not take effect without the rules in place. In 2006, the Supreme Court unexpectedly adopted the necessary rules.
In a decision entered Friday, U.S. District Judge David H. Coar rejected a request from Attorney General Lisa Madigan that the federal court dissolve the order that put the law on hold.
Coar said the law still fails to give a teenager workable judicial options to notify her parents, calling parts of the statute "contradictory and incomplete."
- Planned Parenthood of Illinois is now a reality. A new name, but still your same Planned Parenthood!
The five individual Planned Parenthood affiliates throughout this state officially opened their doors today as Planned Parenthood of Illinois (PPIL).
“We decided together that by joining forces we would be able to broaden our services, and deepen our commitment to health care throughout the state of Illinois most effectively,” said Steve Trombley, who will become the President & CEO of PPIL.
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Don't forget about my Boca Burger Give-a-way!
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Technorati tags: reproductive justice, Illinois, feminism, pro-choice, NARAL, ACLU, Planned Parenthood
Diabulimia (Skipping Insulin to Slim Down) Increases Morbidity and Mortality
CNN first mentioned “diabulimia” last June:"Like many teenage girls, Lee Ann Thill was obsessed with her appearance. Then one day at a camp for diabetic teens, she heard counselors chew out two girls for practicing “diabulimia” — not taking their insulin so they could lose weight, one of the consequences of uncontrolled diabetes..."
Not surprisingly, a study published in Diabetes Care shows that women who restrict insulin face higher mortality and morbidity. The study authors also proposed a screening question for diabulimia asking patients to answer true or false to the statement, “I take less insulin than I should.”
In the world of medical journals, Web 2.0 is here to stay -- Diabetes Care prominently features several social bookmarking tools with each articles. A comment section is still missing however.
References:
Morbidity and Mortality in Women with Type 1 Diabetes. Ann E. Goebel-Fabbri et al. Diabetes Care.
Diabulimia: Skipping Insulin to Slim Down. Clinical Cases and Images - Blog.
Women who restrict insulin face higher mortality, morbidity. ACP Internist Weekly.
Image source: Wikipedia, public domain.
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